Strategies for Thriving Post-Stroke: My Personal Experience

Life continues to be normal in it’s abnormality. Since the Hill Country Conservancy Breakfast, I have:

  • taken a session of a biblical literacy for Unitarian Universalists course
  • had therapy with my psychological therapist to work through thoughts on procrastination and attachment to outcome
  • Had a couple sessions of PT and OT
  • Had a contrast/non-contrast MRI (results to come after I meet with one of my neurologists)
  • worked on plan, ideas, and my organizing system for writing a book
  • worked on getting my task management under control
  • got my head shaved
  • attended Austin FC’s season opener victory over KC in a misty 40 degrees
  • done a shopping trip in someone my OT’s car, including self checkout and unpacking
  • had a speech/swallow/cognitive therapy session which included planning my on-hour-daily exercises for PT, OT, and ST
  • (TMI) went over 36 hours with no incontinence, 4 consecutive days of bowel control

I get exhausted and sore. Have not had time to watch a video at night with Rachel since Thursday. This is more work than my body is read for. It is great!

Through this all, I have noticed my state of mind reports in Apple Health are mostly the same: very pleasant, with positive emotions about all aspects of my life. Sure I am occasionally grumpy, but it is so infrequent and short, it almost never gets picked up by the randomly scheduled stae of mind updates.

As a result of this state of mind, I have to ask “What happens when my improvement stops?” Most stroke patients stall in their progress after six to twelve months. I am past that. Is a stall coming? It does not feel like it. I feel better almost every day. I feel stronger. I feel more in control.Last time I took a narcotic was February 4. It seems unlikely this roll can continue uninterrupted. So, doomsayer that I am I ask “What happens then?” I think the only answer is I keep trying to be the best I can be and keep being happy with who I am.

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